Time is molasses when you're waiting. The sun rose on my Monday as I headed out to the capitol city and my own personal hell...city driving and a loved one in a hospital.
Sunday had gone well with packing and filling the lists for Hubby's wants and needs...a real razor, real soap...simple things we so become accustomed to having. Had a small panic when I forgot how many cows Hubby had when we fed. I had Andrew driving and looking for bodies. We confirmed with Marcy the count and all were there. I continued to pack planning an extended stay.
Driving and getting behind more old ladies driving like me slowed me down a little but still arrived fifteen minutes before a conference that did not happen until six PM. Tests, tests, tests, transplant consultation/education, financial advisers, dietitians, nurses, helpers, questions to answers and secrets to tell left no time for computer updates.
Hubby has stabilized amazingly...probably something to do with PRAYER (thank you all!) and a good medical staff. He has been removed from all IV lines and has been told to roam the halls between tests to keep up his strength. So far every test has been good. They are looking for anything that might interfere with the success of transplant if and when he is accepted for the list and it happens.
Finally the main doc arrives and says, "Congestive Heart Failure". Not fatal AT THE MOMENT if managed. Congestion has been reduced, blood pressure stabilized and Hubby can breath again. Tests will continue and assessment of every aspect will be under the microscope. My sick humor keeps popping out so if I'm judged mentally unstable that will make Hubby a bad candidate. They say the Home Team is as important and the hospital team.
Oh, the things we've learned that I never wanted to know!
They are doing a heart cath Wednesday to get a new close look. Possibly, hopefully, if all goes well, Hubby will get to come home Wednesday...condition managed with oral medicines. We will be grateful, eat heart healthy, exercise and continue tests on an outpatient basis.
Driving home after dark...blind as a bat...why do they say that when bats can navigate better than a sighted person with their little sonars? Check engine light comes on in a sixty mile stretch of empty road. I drive. It's my only choice. FINALLY I see a station. I check the oil in the semi-darkness mostly by feel then I take my dipstick toward the light. Oil's good. Water's good. That's the best I can do.
I hear a lady who says, Is everything alright? I said, Check engine light on. Returning from Little Rock, no cell, not a mechanic. She said, We're coming from Little Rock too. We took our son to Children's...seizures. I privately imagine the horror of having a sick child. I said I will pray for him if that's okay. She said, Praise God! I've been drug free for six months. My husband will check your car. He did. All levels okay and I continue home.
I pull in driveway and immediately lock my keys in the car while unloading it. I drop things in the dirt trying to haul things into the house. Find my extra keys and finish the car. Check on Marcy and discover her doc says she "almost" has pneumonia. Waited on Andrew to safely arrive from a track meet. I think we finally hit the sack after eleven.
I have a mechanic appointment. It's not raining yet. My edges are ragged and torn but life is good.
Thank you everyone.
a tale of tails, tenacity, and tedium, as told by me, usually barefoot and bellowing
Showing posts with label tests. Show all posts
Showing posts with label tests. Show all posts
Tuesday, April 2, 2013
Saturday, March 30, 2013
Things I've Learned While At The Mercy Of Medical Care...
#1 PLEASE BE QUIET PEOPLE ARE HEALING does not apply to staff, neither house keepers nor care givers.
#2 Comfort and hospitals do not go together. They may be color coordinated and falsely cheerful but there is no comfortable spot here unless it is in the leaving.
#3 The healthier the food, the more disgusting it tastes...may only apply to food served here.
Sick humor again. The staff is wonderful.
Thank you for all your prayers and healing thoughts. I know I could feel you with us. Could not have done this without your shoulders to cry on. Double thanks for the thoughtful follow ups and the special posts requesting prayer for Hubby.
Update: Refraction rate is closer to twenty percent than ten so that is a relief. His breathing is greatly improved and his blood pressure and water retention have both lessened significantly.
Testing, testing, testing. He has to be worth saving before they put him on a list. So far so good...no TB, no VD nor AIDS. No blood clots. Basically they said he has to be clear of any other illnesses before they put him on a list for a new heart. So tests will continue into perpetuity (I know that's usually a financial term but I do think it will also apply here.)
Look's like we're going to meet our major medical out of pocket expense again this year...oh, yeah! I haven't checked to see if they cover transplants. If it doesn't, I guess they can repossess the heart. Thank God we do have insurance.
Hubby sent me home to feed the cows and wash his favorite pjs. I think he was tired of me telling on him to the nurses when he has a problem.
I just checked that load of laundry and have washed his leather belt!!!...but y'all know I'm half crazy anyway. Andrew and I have weighted his belt down with books and boards and a trunk so the leather won't curl...
I over heard Hubby telling a friend on the phone that when he gets a new young heart, he's gonna get a new young wife because I won't be able to keep up with him then. I smiled because he doesn't know I am already working on his honey-do list...and I flipped him off. I'm bad.
Remember please, my perceived insensitivity is only my sick sense of humor...my survival mode. (I cry when no one can see me.)
Oh, and I captured some ghostly orbs in the hospital garden....wooooooooooooo! Scary.
#2 Comfort and hospitals do not go together. They may be color coordinated and falsely cheerful but there is no comfortable spot here unless it is in the leaving.
#3 The healthier the food, the more disgusting it tastes...may only apply to food served here.
Sick humor again. The staff is wonderful.
Thank you for all your prayers and healing thoughts. I know I could feel you with us. Could not have done this without your shoulders to cry on. Double thanks for the thoughtful follow ups and the special posts requesting prayer for Hubby.
Update: Refraction rate is closer to twenty percent than ten so that is a relief. His breathing is greatly improved and his blood pressure and water retention have both lessened significantly.
Testing, testing, testing. He has to be worth saving before they put him on a list. So far so good...no TB, no VD nor AIDS. No blood clots. Basically they said he has to be clear of any other illnesses before they put him on a list for a new heart. So tests will continue into perpetuity (I know that's usually a financial term but I do think it will also apply here.)
Look's like we're going to meet our major medical out of pocket expense again this year...oh, yeah! I haven't checked to see if they cover transplants. If it doesn't, I guess they can repossess the heart. Thank God we do have insurance.
Hubby sent me home to feed the cows and wash his favorite pjs. I think he was tired of me telling on him to the nurses when he has a problem.
I just checked that load of laundry and have washed his leather belt!!!...but y'all know I'm half crazy anyway. Andrew and I have weighted his belt down with books and boards and a trunk so the leather won't curl...
I over heard Hubby telling a friend on the phone that when he gets a new young heart, he's gonna get a new young wife because I won't be able to keep up with him then. I smiled because he doesn't know I am already working on his honey-do list...and I flipped him off. I'm bad.
Remember please, my perceived insensitivity is only my sick sense of humor...my survival mode. (I cry when no one can see me.)
Oh, and I captured some ghostly orbs in the hospital garden....wooooooooooooo! Scary.
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